Need Financial Assistance? A Guide to SSI, Medicaid, BCMH and WIC
I remember having the girls and not even thinking about money. I remember how overwhelmed I felt when we started getting bills for thousands and thousands of dollars. I immediately started freaking out...
View ArticleLife as a Preemie Working Mom after the NICU
I had all of 10 minutes’ notice I was about to become a preemie mom, which was barely enough time to hysterically call my parents and send a few text messages before I found myself off on a wild...
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Organization 101 for the Medically Complex Child
Truth be told, I have always been very organized. A useful skill after my son Caleb was born with VACTERL association as it helped us to better navigate his seemingly endless specialist visits,...
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{FB Chat} Parenting Children with Special Health Concerns
Hand to Hold invited NICU parent, author, and parenting educator Lisa C. Greene of Parenting Children with Health Issues to join us for a chat on parenting, especially after a NICU experience or having...
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Returning to Work During a NICU Stay
I wish I could say that I was the NICU mom who spent every day in the hospital with my baby. Even after 3 years, I am still working through the guilt I have for returning to work just 8 days after my...
View ArticleSocial Security Disability Benefits for Your Preemie
As if being thrust into preemie parenthood is not overwhelming enough from parental and medical viewpoints, the financial aspects of an early arrival can leave you feeling just as helpless. When Roxy...
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Finding Good Therapy Services for Your NICU Baby
“Any questions?” she asked at the end of the tour. My mind was searching, grasping for something to ask, but I was so distracted and overwhelmed by all of the medical equipment. I couldn’t contain my...
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10 Things I’ve Learned About Prematurity
When you experience a premature birth, you’re bound to be changed. Here are a few things I’ve learned about prematurity… 1. Be patient – I find there are so many situations where I need to adjust and...
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12 Tips for Getting Synagis Injections Approved
Getting Synagis injections approved by insurance companies can be cumbersome, but for me the threat of my babies catching RSV was always worse. So, I stumbled my way through several Synagis approval...
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Affording the NICU: 6 Ways to Reduce the Cost
A few weeks into my daughter’s NICU stay, my husband discovered a mistake. We had failed to put M on our insurance. The process had changed, and we had missed the enrollment deadline. My husband said...
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Accessing Resources with Help from a Social Worker
Having a preemie is a very scary process and can also be very confusing. When your baby arrives early, you’re not prepared in the way you might have been if you’d carried to full term. I know this was...
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Hidden Costs of the NICU
Having a baby is expensive. Having a baby in the NICU is astronomically more expensive; the details vary depending on your employer and insurance coverage, but there is no way around the fact you will...
View ArticleNew, small NICUs – convenient, or risky?
Five months in the NICU made the daily drive to Swedish Medical Center in Seattle quite tiresome. And then we met some Alaskans in the waiting room, who told us stories about being hustled on to air...
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